{"id":12712414,"date":"2024-05-07T09:00:44","date_gmt":"2024-05-07T08:00:44","guid":{"rendered":"https:\/\/kapitalis.com\/tunisie\/?p=12712414"},"modified":"2024-05-07T09:00:45","modified_gmt":"2024-05-07T08:00:45","slug":"640-patients-souffrent-dhemophilie-en-tunisie","status":"publish","type":"post","link":"https:\/\/kapitalis.com\/tunisie\/2024\/05\/07\/640-patients-souffrent-dhemophilie-en-tunisie\/","title":{"rendered":"640 patients souffrent d\u2019h\u00e9mophilie en Tunisie"},"content":{"rendered":"\n

La Tunisie compte environ 640 patients souffrant d\u2019h\u00e9mophilie, maladie h\u00e9morragique h\u00e9r\u00e9ditaire, a indiqu\u00e9 le pr\u00e9sident de l\u2019Association tunisienne de l\u2019h\u00e9mophilie (ATH), Mohamed Taoufik Erraies <\/em><\/strong>(Illustration)<\/em>.<\/em><\/strong><\/p>\n\n\n\n\n\n\n\n

S\u2019exprimant lors d\u2019une r\u00e9union tenue dimanche 5 mai 2024 \u00e0 la Cit\u00e9 des Sciences \u00e0 Tunis, \u00e0 l\u2019occasion du 40e<\/sup> anniversaire de l\u2019association et de la Journ\u00e9e mondiale de l\u2019h\u00e9mophilie, qui tombe le 17 avril de chaque ann\u00e9e, il a soulign\u00e9 que l\u2019h\u00e9mophilie est provoqu\u00e9e par un d\u00e9ficit d\u2019un facteur de coagulation sanguine, entra\u00eenant des saignements r\u00e9currents et des h\u00e9morragies spontan\u00e9es.<\/p>\n\n\n\n

Erraies a soulign\u00e9 que l\u2019ATH est confront\u00e9e \u00e0 de nombreux d\u00e9fis, notamment l\u2019enregistrement du nombre de patients h\u00e9mophiles et la collecte de donn\u00e9es par r\u00e9gion afin de comprendre la situation et d\u2019\u00e9tablir un registre national des h\u00e9mophiles et des personnes atteintes de troubles de la coagulation sanguine pour faciliter la recherche et intervention m\u00e9dicales, ainsi que la promotion des protocoles de soins et de la gestion des patients.<\/p>\n\n\n\n

De son c\u00f4t\u00e9, Emna Gouider Belhadjali, chef de l\u2019unit\u00e9 d\u2019h\u00e9mophilie \u00e0 Tunis et vice-pr\u00e9sidente de la F\u00e9d\u00e9ration mondiale de l\u2019h\u00e9mophilie, a soulign\u00e9 l\u2019augmentation du nombre de patients atteints de cette maladie h\u00e9r\u00e9ditaire, malgr\u00e9 les efforts d\u00e9ploy\u00e9s en mati\u00e8re de pr\u00e9vention et de recherche de traitements appropri\u00e9s.<\/p>\n\n\n

\n
\"\"
Emna Gouider Belhadjali.<\/em><\/figcaption><\/figure>\n<\/div>\n\n\n

Elle a appel\u00e9 les proches des patients h\u00e9mophiles \u00e0 en apprendre davantage sur la maladie et \u00e0 opter pour les traitements disponibles pour att\u00e9nuer ses effets n\u00e9fastes.<\/p>\n\n\n\n

L\u2019ATH a \u00e9t\u00e9 fond\u00e9e en 1984 pour sensibiliser et soigner les personnes atteintes de la maladie.<\/p>\n\n\n\n

D’apr\u00e8s Tap.<\/em><\/strong><\/p>\n","protected":false},"excerpt":{"rendered":"

La Tunisie compte environ 640 patients souffrant d\u2019h\u00e9mophilie, maladie h\u00e9morragique h\u00e9r\u00e9ditaire. <\/p>\n","protected":false},"author":8,"featured_media":12712465,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[998,2433],"tags":[20351,115461,115462,115458,115460,115459],"class_list":["post-12712414","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-societe","category-tunisie","tag-cite-des-sciences","tag-coagulation-sanguine","tag-emna-gouider-belhadjali","tag-hemophilie","tag-maladie-hemorragique","tag-mohamed-taoufik-erraies"],"yoast_head":"\n640 patients souffrent d\u2019h\u00e9mophilie en Tunisie - Kapitalis<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/kapitalis.com\/tunisie\/2024\/05\/07\/640-patients-souffrent-dhemophilie-en-tunisie\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"640 patients souffrent d\u2019h\u00e9mophilie en Tunisie - 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